The Myasthenia Gravis Associations of Australia have come together under a National Myasthenia Alliance to enhance the support already offered to Australians suffering from the neurological auto-immune conditions categorised under the term ‘Myasthenia’.
The Alliance will provide a strong and unified voice for Myasthenia sufferers by generating more awareness of, and further interest in, these conditions. Through contact with Federal organisations, departments and individuals and by providing a point of contact for Australians from every state and territory, the Alliance provides a targeted forum with items of national importance. The Alliance will enhance the work done by the State Associations.
News and Events
The MAA has written in detail to Health Minister Hunt drawing to his attention the potential benefits of making Rituximab available via the PBS. Minister Hunt has replied and so is aware of this communication. To demonstrate the importance of this request, we are asking the Myasthenia community to approach local Federal members to bring this issue to their attention and request a progress update. Supporting material and advice is available from Susan by calling 1800 802 568.
The 2019 Myasthenia Gravis Conference is now confirmed for Sat Aug 3 and registrations are now being taken! The program will cover a range of special interest sessions along with the latest information about treatments for the many variations of Myasthenia Gravis. The cost is $90.00 per person for a full day (8.30am - 5pm) and includes morning tea, lunch and afternoon tea. Susan will happy to answer questions if you call 1800 802 568. Email firstname.lastname@example.org or call 1800 802 568 to request a registration form.
Regrettably, the 2019 Myasthenia Gravis National Conference date has been adjusted from July 14th to August 3rd so as to ensure a wide range of speakers are indeed available for the day. The MAA extend apologies in regard to this change of date. If further information is required please call Susan on 1800 802 568. The venue remains as previously advertised.