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Myasthenia Alliance Australia

The Myasthenia Gravis Associations of Australia have come together under a National Myasthenia Alliance to enhance the support already offered to Australians suffering from the neurological auto-immune conditions categorised under the term ‘Myasthenia’.

The Alliance will provide a strong and unified voice for Myasthenia sufferers by generating more awareness of, and further interest in, these conditions. Through contact with Federal organisations, departments and individuals and by providing a point of contact for Australians from every state and territory, the Alliance provides a targeted forum with items of national importance. The Alliance will enhance the work done by the State Associations.

News and Events

Sunday, April 22, 2018

The drug Rituximab, otherwise known as MabThera, appears to be a more regularly considered treatment option for people with Myasthenia Gravis. Access to this drug varies greatly depending on each individual situation.

Sunday, April 22, 2018
Should the Alliance decide to lobby the PBS for additional support in regard to accessing medications, we will need evidence of the Public Support behind such an initiative. This can be done in Queensland and New South Wales by becoming paid up members of these Associations. Membership can be considered from applicants located outside the registered states.
Sunday, April 22, 2018
When taking medications for a rare condition it is always important to retain a sufficient reserve of your medications. With such a reserve, should there be interruptions to the supply you will be less likely to be at risk in the short term. Unfortunately it is generally the case that only one company supplies the vital medications specifically needed for rare diseases. For example, Mestinon is only provided by Valeant Pharmaceuticals whereas Cellcept is only provided by Roche.

Do You Need Support?

The Myasthenia Alliance of Australia is proudly supported by Australia’s State Associations. If you’re needing help, please visit one of these sites.